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Terminally ill ex-CBBC star, 28, battling cystic fibrosis fears she won’t live to see family after lockdown – as she faces treatment at home while her hospital unit is used for coronavirus patients Chelsie Whibley, 28, is terminally ill with inherited disorder cystic fibrosis She has been asked to quarantine indefinitely as she is classed … Read more
‘I’m a cystic fibrosis warrior, and I beat COVID-19.’ That’s what one six-year-old Tennessee boy said after beating the odds and making a full recovery from the novel coronavirus that has plagued the world. Joseph Bostrain suffers from cystic fibrosis, a disease that causes the body to produce thick and sticky mucus that can clog … Read more
‘It’s cruelty’: Cystic fibrosis patient blasts postcode lottery after she is denied ‘miracle’ drug by her local hospital Megan Kellett-Jones, 28, hoped she would be given the drug Trikafta to help Her hospital is waiting for the treatment to be approved by drugs regulator NICE Drugs on the NHS – Orkambi and Symkevi – work … Read more
A four-year-old with cystic fibrosis has received the Christmas gift of her dreams – a wonder drug for her crippling condition. Ayda Louden’s family, from Carlisle, Cumbria, spent years calling for NHS access to Orkambi. It was finally approved in October. The schoolgirl got her first delivery of the life-changing drug, which should extend her life … Read more
It’s been hailed as a wonder drug with the potential to extend the lives of thousands of people with cystic fibrosis. But patients across the UK still can’t get their hands on Orkambi – despite it being a year since Theresa May promised to take action. The drug, which slows lung deterioration, received its European … Read more