Stranger Things star Gatan Matrazzo single-handedly raised awareness about rare bone disease

One of the stars of Netflix’s popular TV show Stranger Things has single-handedly been raising awareness about his incredibly rare genetic bone condition, a new study suggests. Gaten Matarazzo, 17, who plays Dustin Henderson, was born with a disorder known as cleidocranial dysplasia (CCD) that leaves him with teeth stuck in his gums and no collarbones. … Read more

Burning rubber! £1MILLION rare Ferrari F40 is destroyed after bursting into flames in Monte Carlo

Burning rubber! £1MILLION rare Ferrari F40 is destroyed after bursting into flames in Monte Carlo Italian sportscar sent flames and a plume of smoke into the air after the back ignited in Monte Carlo, Monaco When the flames were finally extinguished the car was left as a blackened and melted hulk on the road Ferrari … Read more

Burning rubber! £1MILLION rare Ferrari F40 is destroyed after bursting into flames in Monte Carlo

Burning rubber! £1MILLION rare Ferrari F40 is destroyed after bursting into flames in Monte Carlo Italian sportscar was pictured with flames leaping out of the back two days ago Ferrari only made 1,311 F40s in the late 1980s and early 1990s for the market Vehicle was left melted and blackened after flames were doused by … Read more

Tess Daly shares rare throwback snap with husband Vernon Kay

Tess Daly, 50, cosies up her husband Vernon Kay, 45, in rare throwback snap as she celebrates 20 years since their first Valentine’s Day together By Laura Fox For Mailonline Published: 10:20 GMT, 20 February 2020 | Updated: 10:25 GMT, 20 February 2020 They’ve been married for 16 years and shared two daughters. And Tess … Read more

Woman’s ‘liver cancer tumor’ that was the size of a grapefruit turned out to be a rare parasite

A Canadian woman said she ‘was preparing to die’ when she was told she had a liver tumor only to be left even more shocked when it turned out to actually be a rare parasite that she will have to treat for the rest of her life. For years, Cassidy Armstrong, 36, of Edmonton, Alberta, … Read more

Meet the founders of Healx who plan to treat 100 rare diseases by 2025 using AI

You’d be forgiven for thinking the creator of the drug that cured the erectile dysfunction of millions around the world would be enjoying the profits of his hard work. But you’d be wrong. Instead, the co-creator of Viagra, Dr David Brown, has set himself the ambitious challenge of finding treatments for 100 rare diseases by … Read more

California woman, 23, crowd surfs and performs despite rare fragile bone disease

Sarah Mumper, 23, was born with fibrous dysplasia, a rare bone disease also marked by the ‘cafe-au-lait spots’ that have been visible on her cheek and neck since birth  When operations assistant, Sarah Mumper, 23, from California was just two and a half years old, she was diagnosed with McCune-Albright syndrome, or fibrous dysplasia, a … Read more

Girl, 17, suffers from a rare brain condition that causes her to collapse when she laughs

A teenager with an unusual brain disorder that causes her to collapse when she laughs has revealed she spends less time with her funny friends. Billie Hodgson, 17, suffers from cataplexy, which triggers sudden muscle paralysis and can strike whenever she giggles. Her unusual ailment is a complication of narcolepsy, which affects around 22,500 Britons. As … Read more

Woman, 32, was expected to DIE as a newborn from a rare condition that causes pus-filled blisters

A woman claims she wakes up every morning stuck to her bed sheets due to a rare condition which causes pus-filled blisters all over her body. Assya Shabir, 32, was diagnosed with junctional epidermolysis bullosa (JEB) when she was born, the most severe type of epidermolysis bullosa.  The incurable condition means her skin and internal … Read more

Twin girls with rare blood-sharing disorder in the womb are thriving

California schoolteacher Brittany Bruley was elated when she discovered she was expecting her first child earlier this year – and shocked a few weeks later at Easter time when an ultrasound revealed she was carrying twins.  Multiples don’t run in either her family or her husband’s, and the babies were conceived naturally. She waited until … Read more